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Every patient has a story.

The "I'm Not Average" campaign features fellow Americans whose lives have been impacted by treatments and cures for debilitating, chronic, or rare diseases.

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I'm Not Average: Henry

Condition:
Glutaric Acidemia Type 1


Age:
3


Location:
Newnan, Georgia


Today, pre-schooler Henry wants nothing more than toy trucks, animals and to be playing with both outside. But when he was just six days old, his parents wanted answers. #ImNotAverage


That’s when tests on the newborn boy led to a diagnosis of Glutaric Acidemia Type 1, a metabolic imbalance that causes the body to produce dangerous toxins that can lead to metabolic stroke in people of any age.

“We were overwhelmed,” his mother says, “not knowing what the future held for our precious son.”

But thanks to early medical intervention, diet management, and hard work, Henry is more than a patient today. “He’s a typical, two and a half year old boy,” his mother says. Bring on the toy trucks, the baby animals, and the world.

Condition:
Glutaric Acidemia Type 1


Age:
3


Location:
Newnan, Georgia

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Make your voice heard. Join the important discussion on the value and economic impact of new medicines.


connect with PhRMA...

Make your voice heard. Join the important discussion on the value and economic impact of new medicines.


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